The film is a personal statement of the director and his wife, who have to deal with a very rare and incurable disease of their newborn child – the Ondine’s Curse (also known as CCHS, congenital central hypoventilation syndrome). People affected with this disease stop breathing during sleep and require a lifetime mechanical ventilation on a ventilator. The film shows the process of taming fear associated with the disease.
Made in PL
5.6/10
2013
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Cast
Tomasz Śliwiński
As Self
Magda Hueckel
As Self
Leo Hueckel-Śliwiński
As Self
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